Foundations & Groups

Phelan-McDermid Foundation (PMSF)


 It is the mission of the Phelan-McDermid Syndrome Foundation to improve the quality of life of people affected by PMS worldwide by providing family support, accelerating research and raising awareness.

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National Organization for Rare Disorders (NORD)


NORD is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them.

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Special Needs Network Inc. (SNNLA)


 Special Needs Network’s mission is to raise public awareness of developmental disabilities and to impact public policy, while providing education and resources to families, children and adults.

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Autism Speaks


Autism Speaks is dedicated to promoting solutions, across the spectrum and throughout the lifespan, for the needs of individuals with autism and their families through advocacy and support; increasing understanding and acceptance of people with autism spectrum disorder; and advancing research into causes and better interventions for autism spectrum disorder and related conditions. 

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Autism Now


The nation's source for resources and information on community-based solutions for individuals with autism, other developmental disabilities, and their families.

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Global Down Syndrome Foundation


The Global Down Syndrome Foundation is a public non-profit 501(c)(3) dedicated to significantly improving the lives of people with Down syndrome through Research, Medical Care, Education and Advocacy. 

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